Catatonia in a relative can be a very strange and confusing syndrome for family members, and a number of the features could be upsetting to witness. There are a number of potential sources of information that they can be directed to:
Royal College of Psychiatrists webpage on catatonia
(there is also an easy read information available)
Some families may wish to know more of the evidence base for treatments – which is well summarized in the 2023 British Association for Psychopharmacology consensus guideline
.
Some family members may find it beneficial to see the Catatonia Bundle, to appreciate the systematic and thorough approach being undertaken for their relative. Having the full MDT ‘on board’ and engaged in their own role in the patient’s care can also be reassuring.
Consider asking family to fill-in a Getting To Know Me
form for their relative, so that care and interactions they receive from the MDT can be personalised, and preferences can be considered. Some patients may wish-for and benefit from chaplaincy input, but this is very much patient-specific.
Catatonia is truly a syndrome which tests a system’s ability to provide MDT and patient-centred care. Successful care is joined-up, holistic and involves assertive medical management. Without this, patients can deteriorate psychiatrically, physically, and be at risk of morbidity and even mortality. Admissions may also be prolonged by delays to identification and management.