The loss of a pregnancy or baby can have a profound impact on women/birthing people, care partners and the wider family.33 More than one in six pregnancies in the UK end in loss each year.34 In addition, there is a higher risk of pregnancy or baby loss during a multiple pregnancy.2
It is important that women, care partners and families (including siblings) are supported at all stages of pregnancy and baby loss. Women should receive continuity of carer and support that is compassionate, person centred and trauma informed (see Standard 1). This includes offering opportunities to make memories and mark their loss. Communication, support and decision making should be in line with the principles of care described in Standard 1 and Standard 2.
NHS boards should implement the national bereavement care pathway for pregnancy and baby loss, the miscarriage framework and relevant guidance. There should be timely clinical intervention, referral for specialist mental health support and support for the management of subsequent pregnancies, as appropriate. Information should be appropriately shared with members of the woman’s care team, including her GP.
NHS boards should have an identified strategic maternity specific bereavement lead to provide oversight across the maternity pathway. The lead will ensure services work together to deliver co-ordinated bereavement care at all stages of pregnancy and postnatally. This should include management of early pregnancy loss and palliative care for newborn babies. The lead should ensure partnership working with social care, third sector and spiritual and faith groups and services.
Staff should receive training in bereavement care and support and be able to deliver person-centred and trauma-informed care to women and their care partners and families. Women should be supported to understand what has happened and should be given the opportunity to have supported discussions with appropriately trained staff. Where there is an investigation or review of the pregnancy or baby loss, women, and where appropriate, care partners and wider family, should receive trauma-informed support and care.
Maternity units should provide dedicated trauma-informed spaces that are private, comfortable, psychologically safe, non-clinical and avoid contact with other women and their babies. Services should be designed collaboratively with people with lived experience to support the psychological safety of women, care partners and families, including siblings.
Staff should be able to access support for their own mental health and emotional wellbeing, including vicarious trauma (see Standard 5).