Notification of positive coeliac serology in NHS Lothian

The laboratory at WGH routinely notifies the requestor of the positive serology test (Endocrinology consultant, nurse specialist or less commonly the GP) in the usual manner via TRAK results workbench. The CYP coeliac service are also notified directly by the laboratory of all new positive results. The coeliac service dietitians via the CYP coeliac dietetic service email, loth.cypcoeliac@nhs.scot, will contact the requestor about the positive result, requesting further details and to discuss a plan of action. For patients within the diabetes service, the coeliac service will contact the diabetes team member / responsible consultant about the test and discuss the results and make a shared plan, using the strategies outlined below (and in flowchart).

The diabetes team will inform the family about the results and take the plan forward, with ongoing advice from the Coeliac Service as required. Advise all patients to remain on a gluten containing diet until investigations have been concluded.

Please note, NHS Borders and NHS Fife use different assays. We are not automatically notified by their laboratories, but by the local teams referring / discussing with us. Any positive results should be discussed with the NHS Lothian Coeliac Service by the local team.