Nutritional treatment: oral, NG & NG feeding under restraint
The provision of nutrition and management of mealtimes on the ward are essential in treating and improving the young person’s physical health. It is important that all staff see the provision of nutrition as equally important to any prescribed treatment. The use of meal plans, and meal support is the preferred first line treatment in children and young people.
The dietitian will provide an appropriate re-feeding plan. Meal plans can be adapted for genuine food dislikes that preceded the eating disorder, confirmed by parents or family members.
Most young people under 18 years old can be safely commenced on a feeding plan of at least 1,400kcal per day, even if they are thought to be high risk of re-feeding syndrome. Patients should not be started on less than their reported intake prior to admission, however this can be difficult to assess accurately and gathering information from parents and carers is essential.
Energy intake should increase by at least 200kcal every 1 to 2 days (depending on re-feeding risk), up to 2,400kcal per day if needed. Clinical judgement should be used to minimise the risk of underfeeding.
Weight should also improve by > 0.5kg/ week. Electrolytes must be corrected as soon as possible, and re-feeding should not be delayed during this process. If there are significant concerns with electrolytes dropping, then nutritional intake should not be advanced until safe to do so.
Oral intake
Most patients should be commenced on Meal Plan 1 (1,400kcal) and can be increased by at least 200kcal every 2 days, until they can be fully assessed by a dietitian. See: Meal plans section.
Each meal plan will have an equivalent volume of suitable oral nutritional supplement that must be provided if the meal or snack is refused or if the full meal or snack has not been eaten. If there is continued refusal of food and oral nutritional supplement orally, then NG tube feeding will need to be discussed and considered by the multidisciplinary team and use of the mental health act may be required for this.
A patient copy of the meal plan should be provided to the patient and family so that they are aware of what should be ordered at each meal and snack. The calorie content of the meal plan and the volume of the Fortisip should be removed from the patient copy to minimise distress. The patient should NOT have access to the staff copy of the meal plan. In some cases it may be agreed that ward nursing staff will order on the patient’s behalf and staff should order meals and snacks as per the meal plan.
- ALL food and fluids must be documented clearly on food and fluid charts so that the dietitian can calculate the total amount that has been managed daily.
- ALL meals, including snacks, must be closely supervised.
- Meals should be limited to 30 minutes, snacks limited to 15 minutes and Fortisip top-ups limited to 10 minutes.
Staff should be aware that mealtimes may be very difficult and distressing for patients and they may require a great deal of support. See: Mealtime management section.
Naso-gastric tube (NGT) feeding
NGT feeding should be seen as a last resort to the dietary management of a young person with an eating disorder. However, if it is required due to the patient's medical needs, then the aim is to use it for the shortest time possible and to continue to encourage the young person to eat instead.
In cases that NG feeding is advised we recommend a multiagency meeting to review dietetic, medical and psychological possibilities to either avoid enteral feeding or to consider a multidisciplinary exit plan from enteral feeding when it is required.
Least restrictive practice is essential in the patients care and the patient should be offered the option to eat at every opportunity e.g. they have the option to eat the meal or snack as per the meal plan, the next option is to drink the equivalent Fortisip volume, the next option is to have the Fortisip volume bolused via the NGT by syringe NOT by gravity or pump.
Initiating NGT feeding should be based on a review of the young person’s progress and level of physical risk. Any decision to initiate NGT feeding should be made following consultation with the young person, their family and the MDT, with clear a clear exit plan developed. Ideally the MDT would include a dietitian, nursing staff, medical consultant, consultant psychiatrist and psychologist, unless their medical state requires more urgent intervention. If the child or young person consistently and actively resists treatment, consideration should be given to treating the young person under the Mental Health Act. The CAMHS Consultant Psychiatrist should be contacted as soon as possible for further assessment if the patient is not consenting to treatment.
Considerations when NG feeding
- Where possible, the patient should be taken to a quiet, calm area to have the NGT passed with as few people as possible present.
- The NGT should be passed and left in situ. There may be some indications where it is appropriate to remove and re-pass the NGT e.g. ligature risk or sensory issues, however this should be discussed on a case-by-case basis.
- Bolus feeding by syringe would be the recommended method unless otherwise indicated.
- Staff should continue to offer food as per meal plan and communicate a high expectation that the food will be eaten. If food or oral nutritional supplements are refused or no attempt is made to eat or complete the meal/ supplement in the time limits set, then a bolus feed is to be given via the NGT.
- If the young person does eat, they need to comply fully with the daily meal plan until the next review day, when a decision will be made as to whether the NGT can be removed. Patients should be given a positive message that the NGT will be removed if they comply fully with the prescribed daily meal plan.
- All due care for the NGT’s should be given: checking the position and state of tube and documenting this care.
- The use of bridles is not indicated in this patient cohort. However, this should also be reviewed on a case-by-case basis as some patients may prefer the use of bridles to minimise movement of the tube and to reduce tube displacement.
- If the young person continually pulls out the NGT and distress around feeding is too great to be managed through reassurance and talking, further discussion with the MDT, including the Medical Consultant and Duty Psychiatrist, must take place to decide the next course of action.
NG feeding under restraint
When a young person is at risk of death from malnutrition caused by an eating disorder, and is refusing any treatment, NGT feeding under restraint may be required as a lifesaving intervention. On these occasions, discussions and careful planning should take place with the MDT and responsible Consultant Psychiatrist as soon as possible. An exit strategy must be discussed before starting this procedure, and the need for NGT feeding under restraint should be reviewed daily.
To reduce distress, length and frequency of restraints required, practice should be adapted to using a larger volume of bolus feeds, by syringe, via the NGT, as few times as possible e.g. 1 to 2 times per day.
There are various levels of restraint, from one member of staff holding the patient's hands to several members of staff being required to hold the young person’s arms, legs and/or head. The level of restraint required should be negotiated with the patient prior to the intervention and agreed as a team carrying out the intervention.
Staff must be appropriately trained in this intervention. The Violence and Aggression Team should be consulted for advice and further training if required.
Under NO circumstances should parents be involved or present during this intervention, except to provide support to the patient AFTER the restraint.
- The bolus feed plan should be provided by the dietitian. Each patient should have an individualised dietetic plan and meal plan in place, so that the patient is aware what they need to eat or drink, in order to avoid bolus feeding.
- Feeding under restraint should be done via syringe bolus, not gravity feeding or via enteral pump, as these would prolong the time of the restraint.
- The planning of the restraint should be agreed and discussed as a team, and with the patient.
- Food and/ or nutritional supplements should continue to be offered at every opportunity. It should not be assumed that the patient will not eat.
- Patient safety must be maintained and closely monitored throughout the procedure.
- The need for feeding under restraint must be reviewed by the MDT daily. If safe, then the frequency of boluses and restraint can further reduce depending on physical risk e.g. to every 2nd or 3rd day.
A staff debrief should be held after each episode of NG feeding under restraint as it is a distressing intervention for staff as well as the patient.
Post feed distraction and support should be provided to the patient, ideally by a member of the team not involved in the restraint procedure, or by a family member.
Further guidance and research regarding NG feeding under restraint in children and young people can be found below.
NOTE: Mental Health Act legislation is different in England and Scotland. Please discuss further with Psychiatry if required.
PEACE pathway and sensory issues
Some patients may have significant sensory challenges for example texture sensitivities in context of ARFID or Autism. The PEACE Pathway (Pathway for Eating Disorders and Autism Developed from Clinical Experience) is a network where clinicians, carers and patients have shared useful information and resources in supporting those with an eating disorder and autism.
For those struggling with a sensory restrictive eating disorder, either within the context of ARFID, autism and/ or sensory processing disorder, some reasonable adaptions can be made and discussed with the MDT. Examples are given below.
Supporting those with confirmed or suspected neurodivergence:
The following questions should be considered to help support the creation of an ideal eating environment for the young person and reduce their anxiety:
- Do they prefer to eat in silence?
- Do they like you to talk to them? Encourage their eating?
- Do they prefer to watch their favourite TV show, use a tablet device, or listen to music?
- Does it help to wear noise cancelling headphones?
- Does it help to eat alongside reading, puzzles or other distractions such as tablets and radio?
- Does it help when the person with them models eating (eats the same food with them)? Or do they prefer to be the only one eating?
- Do they prefer it when someone sits next to them or in front of them?
- Does their chair have to face the door? Or a specific direction?
- Can other people touch/prepare their food? Such as others removing lids from food pots.
Consider options such as how the food can be presented with a routine appearance, how it can be made more acceptable (e.g., using specific branded products / kept separate on the plate) and the type of crockery and cutlery used.
Reasonable adjustments for meals:
The following checklist can be used to support the re-feeding meal plan. It should be completed with the patient and their family and is intended to support their experience and provide guidance to the ward staff:
- I would like to bring in and use my own plate / bowl / cutlery/ straw from home
- I would like to bring in and use my own plate / bowl / cutlery/ straw from home
- I would like to bring in and use my own plate / bowl / cutlery/ straw from home
- I would like my butter served separately from my bread/toast so I can add this myself
- I would like my sandwich filling to be served separately
- I would like my fruit cut-up rather than served whole
- I would like any ‘hot food’ to be served cold
- I would like drinks to be served cold from the fridge
- I would like my jacket potato and filling to be served separately
- I would like my baked beans to be a specific brand – please specify
- I would like my biscuits to be a specific brand – please specify I would like my cereal to be a specific brand – please specify
- I would like my bread to be a specific brand – please specify
- Where a meal has 2 items, I would like these to be served separately rather than put in front of me at the same time. This may mean I have lots of ‘eating episodes’ but this helps me to avoid feeling too full and reduces my anxiety
- Where possible, I would like my parent to oversee bringing me my specified meals and snacks so that they can give me these at more consistent/precise times each day
- Where possible, within health and safety restrictions, I would like to request that my own preferred foods, are brought onto the wards
- I would like to request that all my foods remain separate and don’t touch one another
- I would like to request a milk alternative e.g. soya/almond/oat/rice/pea/coconut/other. Please specify.